[kat58]

Jay,

My mother died in July of 2006 of this disease. She said she was not in any pain. She was coherent up until the end. Her platelets dropped, and she bled gastrointestinaly. She made the decision to stop the transfusions and died within a week of that decision. It was very peaceful, and Hospice made her comfortable until the end. I am very sorry that you are experiencing this, but knowing the end was near gave me the chance to tell her what I needed to say. God Bless.

[kat58]

Deb….I too have been a lurker, but for about a year. I can tell you that drugs that help some seem to hurt others. My mother was put on Revlimid because of low hemoglobin levels. After about 2 months, her platelets, which had been fine, plummeted. I know that the Revlimid has helped a lot of others, but not my mom. I have decided that while the Revlimid probably hastened her death, we had no way of knowing that would happen, and it was worth a try. Am so sorry that you are going through this.

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