MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 4 posts - 16 through 19 (of 19 total)
1 2
  • Author
    Posts
  • December 21, 2020 at 7:17 am in reply to: Revlimid beginning to fail? #53854
    Kevin Dugan
    Participant

    Yes I am. Revlimad did not help me. I developed AIHA. Then retuximab brought my levels back up above 11. No transfusions in over a year.

    December 20, 2020 at 4:22 pm in reply to: Revlimid beginning to fail? #53849
    Kevin Dugan
    Participant

    I have had very good results with retuximab with no side effects. Ask your doctor about it.

    December 14, 2020 at 9:10 am in reply to: ADVICE REQUESTED #53800
    Kevin Dugan
    Participant

    I have had great success with infusions of rituximab.  Previously had several infusions.  Procrit did not help.  RBC btw 11-13 since getting the infusions. No more transfusions. My activity level is back to normal.   No side effects.  8.2 RBC is not a good way to live.  Ask your doctor. 

    October 1, 2020 at 9:43 am in reply to: Not given much info #53084
    Kevin Dugan
    Participant

    Before jumping ship, I would make sure doctor knows what you need. Get copies of all tests, Put your questions in written form so you won’t forget. Then insist that you speak with the dr. at your next appt. If they won’t answer your questions then look elsewhere.

  • Author
    Posts
Viewing 4 posts - 16 through 19 (of 19 total)
1 2

Login

Login

Search Forums

Recent Topics

Message Board
Review answers to commonly asked questions or get answers to your questions from an MDS expert
Enter Message Board

CONTACT US

MEMBER OF

Guidestar
Copyright 2014 - 2024 - MDS Foundation. All Rights Reserved