MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Vidaza Treatments #19144
    ladycat53
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    I was diagnosed with MDS in April of this year. My platelet count was 4 at that time. Yes, it is not a typo, 4. I had several platelet transfusions and 2 blood transfusions before I could start any kind of treatment. I can not comment on Vidaza as I am on Dacogen. But I wanted to let you know that the port is the best thing you can do for yourself. My arms were purple and bruised from fingertips to just above my elbows over a month. And my arms were in constant pain. They didn’t clear up until my port had been in about 2 weeks. I am in my 4th round of Dacogen, my platelets are at 211 and red blood cells are standing at normal levels now. I still have a slightly low white count but my Dr. is keeping me on antibiotics for now. Good luck and God Bless!

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