MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • Linsey Gillespie
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    Hi Melissa Ann. I’m sorry you find yourself in this situation. My first pregnancy was similar. That was when it was discovered I had thrombocytopenia. My platelets then hung out around 50. My hemotologist put me on prednisone, eventually I was taking 90mg daily. Then I did IVIg. None of these had the desired results and my platelets were always around 50. So then it was platelet transfusions as needed. My baby did not live though. She was stillborn at 35 weeks. I do not know specifically what caused her death, but I am sure the prednisone at that dosage was not beneficial to a fetus. I did go on to have two healthy children though, but I never accepted IVIg or prednisone while I was pregnant. After my third child is when my bone marrow began to fail all around and was diagnosed with MDS.
    This is a really bum situation you are in and from my experience all I can tell you is that you need to do what is right for you. The doctors are not the ones who will live with the guilt of termination, if you know that is what you will feel. Also, you need to take care of yourself at the same time, and no one can blame you for doing that. Take the advise of the doctors, ask lots of questions, research. There is no easy answer. You have my heart felt best wishes too.

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