Hi Roger.
You said that you have the RCMD type of MDS…so do I, and your symptoms make perfect sense. I was diagnosed with intermediate stage RCMD earlier this year and, although I realize this disease manifests itself differently in different people, I have had all of the symptoms you described. This type of MDS not only affects your red blood cells, it also affects your white blood cells and/or platelets. That’s why you’re having nosebleeds and bruising in addition to anemia. I support the recommendations that you find a Center of Excellence where physicians specialize in diseases of the bone marrow. This is a complex disease that affects the entire body so the more you know about it, the better able you’ll be to participate in your treatment. There is a lot of self-education material online at sites like this one, the NIH, The MDS Beacon, the American Cancer Society and the American Society of Hematology.
