[Mairi Cooper]

Pat…it sounds as if we are on the exact same track. I will update you as we find out more.

[Mairi Cooper]

My father was diagnosed in 2012 with MDS. Within 6 months of diagnosis, he was complaining about severe joint pain. He has always been a stoic and this was the first time that I heard him complain of pain. He has been on Vidaza since December 2012 but his doctor also put him on a low dose of prednisone for the pain It really helped. While we are now dealing with a decline in his numbers, for years the prednisone kept the pain at bay and (I believe) helped him to fight the MDS.

[Mairi Cooper]

Hi Allan –

My dad was diagnosed with MDS 10 years ago (watch and wait) and started Vidaza treatments in the fall of 2012 (age 78). He also had incredible joint pain. (He has always had a high pain tolerance so we were not prepared for this.) We have been told that is unusual. However, his doctor prescribed a low dose of prednisone along with the Vidaza and that has helped immensely. He now occasionally also takes Naproxen Sodium although we were told at the beginning of his treatments that it was not wise with the Vidaza (prednisone was no problem).

Mairi

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