MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • May 4, 2018 at 1:45 pm in reply to: When the transfusions stop working #36406
    Myrna Miller
    Participant

    My husband was 78 when diagnosed with MDS, he is on Vidaza 5 days every 28 days. His blood counts are not great but has not had a transfusion in over a year. He is now 80 so how much longer this will work is anyones guess. He has absolutely no problem with the Vidaza through his port. The shots in his belly caused problems as did the iv ones. They give him an anti-nausea first and then 170 mg of Vidaza.

    May 4, 2018 at 12:15 pm in reply to: MDS and anemia: Oxygen question #36403
    Myrna Miller
    Participant

    My husband uses oxygen at night and does sleep better, he has also used it during a walk and did not get so winded.

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