MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Can you function on days you get Vidaza.. #46612
    Anna Granger
    Participant

    That is how I feel! Good for you!

    in reply to: Can you function on days you get Vidaza.. #46594
    Anna Granger
    Participant

    My first vidaza treatment was Monday, May 22, 2019. I will receive my sixth treatment tomorrow, the 29th. My oncologist cautioned me about the “erroneous” info online particularly about sleeping a lot after treatment. She was dead-on. After five injections I do not feel any meds in me. I came home and lived my life exactly as I did before MDS. I walked the treadmill a minimum of 30 minutes per day, gardened, go to grocery store and basically do everything I did before. The difference now is due to the anemia, I conserve energy by taking a daily nap of at least an hour and I get about 7-8 hours sleep at night. Due to a history of nausea and vomiting, I get two zofran before the vidaza injection and therefore have had no need for script I filled just in case. The injection areas have been really sore because I don’t have a lot of fat on me, but I teased the nurses to just bridge me to transplant, I can do “sore”! I am 70. Good luck–hope you do as well!

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