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Hello everyone my Mom was diagnosed with Acute myeloid leukemia going on six years ago when she was 80 years old. The doctor told her she was too old for a bone marrow transplant it would probably kill her due to having her immune system zapped. So they started treating her with Vidza and lo and behold it went into remission and she was left with MDS The doctors have continued to treat her with Vidaza once a month for 5 days in a row. Mom has done exceptionally well she still drives wherever she likes and even mows grass. The side effects have been brain fog severe constipation headaches and joint pain. Recently her platelets have starting dropping the doctor said the vidaza is starting to fail.For now we are not doing anything different until her count goes below 50,000. I am hoping some of the rescue drugs will fix this situation but we want know more until we go to UAB to see a specialist. There is hope there is always hope for all of you. Just a side note her hair has not fallen out and she has thrown up maybe twice in almost 6 years.
