MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Home care advice for MDS #30513
    Susan Robson
    Participant

    Dear Diego, My husband is a MDS patient with WBC >.1 HMG 8. and Platelets 20. We were formally diagnosed almost 4 months ago. Some of the things our oncologist told us is your and sanitizer constantly. Face masks when around unknown germ sources. Two of our grandchildren are under 1 and when they get their immunizations he stays away from them for a week. My husband’s doctor also has him on different antibiotics for anti-viral, anti-fungus, anti-yeast all to help keep infection away. I use disinfectant wipes on everything he comes in contact with, controllers, phones, door knobs, his oxygen supplies (tank, etc), any and everything. I keep packets in every room of the house and use them constantly.
    Good luck to you. My prayers are with you and your family.

    in reply to: scared #30455
    Susan Robson
    Participant

    We did get a second opinion from John Hopkins in Seattle. It supports our current oncologist. We are near Spokane Wa.

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