Arian and Gary, so very sorry for the loss of your mom. Wish I could tell you that time will pass and the pain won’t be as strong but that would be a lie. My mom passed @ age 62 21 years ago and I still miss her like crazy! May sound funny coming from a 61 year old who was never a "mamas boy" but it’s true.
GREAT that you are joining the fight against MDS! Two years ago I was diagnosed with a very rare, very aggressive Thyroid Cancer. Insular Carcinoma is the proper name for it. After 7 weeks of radiation, 5 days a week it seemed I was gaining ground. Just had a scan last week and I’m still cancer free! That’s the good news.
Bad news is, that somehow along the way I got MDS, 5q-. They aren’t sure if it was from the radiation or the I131 treatment I got but at any rate I got it!
Like others have said, hard to talk with family and friends about it, they don’t want to hear that this monster is going to kill me. I’ll do my very best to help others thru this as long as I can and God Bless folk like you two who are willing to help!
We all in this thing together, I read this in a book at the Cancer Center one day.
"An individual doesn’t have Cancer………………a FAMILY does!"
