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MikeParticipant
Hello Bexar2120, I did reach out yesterday with 2 emails. Not sure if you received them or spam folder. still interested in chatting if possible.
MikeMikeParticipantHi Janet, Thanks for your reply. I like getting all information to help me make sound decisions. Sounds like the Revlamid may not be choice out of the gate. I did consult my Oncolgist and he threw out chemo, shots, meds, and transfusions (bag of blood). What I came away with was transfusions may be the best options. I realized risk for all treatments. I guess what Im trying to find is the best (safest) treatment until BMT day if/when that comes. Just want to stay as healthy until then. No not a veteran. Retired pilot. No idea how my condition (mds) came about. Again appreciate your feedback.
MikeMikeParticipantHello Bexar2120, I would like to chat about your choices. If you don`t mind. My email beartooth@email.com I have few questions that would help me make the best decisions. I appreciate your input. Look forward connecting with you.
MikeMikeParticipantHi Bexar2120, so are you saying its better to get BMT when I healthy and not wait. Just had doctor meet yesterday. I explain i didn`t want my BMT window to fade away. I refer to BMT to my last hail mary pass. If a treatment was required, they mentioned blood transfusions would be best instead chemo, etc. Also, Im being monitor F Hutch. I appreciate your input.
MikeParticipantHi Bob, yes would like to chat with you about your situation. Not sure how to reach out to you. here`s my email if you can connect directly with me. please email me at beartooth@email.com
look forward talking to you.
Mike -
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