MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • in reply to: type of treatment to start #67212
    Mike
    Participant

    Hello Bexar2120, I did reach out yesterday with 2 emails. Not sure if you received them or spam folder. still interested in chatting if possible.
    Mike

    in reply to: type of treatment to start #67203
    Mike
    Participant

    Hi Janet, Thanks for your reply. I like getting all information to help me make sound decisions. Sounds like the Revlamid may not be choice out of the gate. I did consult my Oncolgist and he threw out chemo, shots, meds, and transfusions (bag of blood). What I came away with was transfusions may be the best options. I realized risk for all treatments. I guess what Im trying to find is the best (safest) treatment until BMT day if/when that comes. Just want to stay as healthy until then. No not a veteran. Retired pilot. No idea how my condition (mds) came about. Again appreciate your feedback.
    Mike

    in reply to: type of treatment to start #67200
    Mike
    Participant

    Hello Bexar2120, I would like to chat about your choices. If you don`t mind. My email beartooth@email.com I have few questions that would help me make the best decisions. I appreciate your input. Look forward connecting with you.
    Mike

    in reply to: type of treatment to start #67187
    Mike
    Participant

    Hi Bexar2120, so are you saying its better to get BMT when I healthy and not wait. Just had doctor meet yesterday. I explain i didn`t want my BMT window to fade away. I refer to BMT to my last hail mary pass. If a treatment was required, they mentioned blood transfusions would be best instead chemo, etc. Also, Im being monitor F Hutch. I appreciate your input.

    in reply to: type of treatment to start #67171
    Mike
    Participant

    Hi Bob, yes would like to chat with you about your situation. Not sure how to reach out to you. here`s my email if you can connect directly with me. please email me at beartooth@email.com
    look forward talking to you.
    Mike

Viewing 5 posts - 1 through 5 (of 5 total)

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