[MichaelL]

Doctors did not recommend us to have Vidaza done and said that it is not for my father at this time. So, we have only Mylotarg left as of now.
His doctor said that he will be administering just Mylotarg by itself, without ARA-C.
Can anybody comment on it?
May be someone knows about chemo with just MYLOTARG by itself?

[MichaelL]

Barbara,

Thank you very much for your caring reply.
I am very sorry to hear what Ron is going through. There is always a hope for the better.
You seem to be a lady who can fight for the better treatment choices!!! I admire people like you. Keep us all posted on the Ron’s condition.
We asked doctors about MD Anderson’s vaccine and they were sceptical about it and did not recommend it. Can you please send me info on the leukemia vaccine at Dana Farber in Boston?
It seems that they have a few…
Please reply asap.
Thanks,
Michael L

[MichaelL]

My father (73) had MDS and it converted into AML (with 90% of blasts) in May of 2004. Since then he had 2 treatments with FLAG chemo and his blasts dissappeared for 4 months. He relapsed in December with 75% of blasts. Few choices were offered – Mylotarg and Experimental study Ida Rubicin with EL625. He agreed to go with the study. First treatment was in the mid. December and after that was sick with pneumonia for 2.5 weeks (had also water retention issue and his weigh increased by 25 lb). Second treatment was done in the mid Jan. of 2005. Few weeks ago he had his BM test. He has 50% blasts. In the mean time, my father feels fine, has good appetite, walks mile per day, drives his car and continues going to the hospital for the transfusions few times per week. His doctor told us that only option for him would be HOSPICE at this time. This means that no regular transfusions anymore, only if he will be sympthomatic. In my understanding, if person has normal quality of life why does he have to be signed up for HOPICE?
He can drive to the transfusion center to get his blood or platelets as needed. Why if they cannot offer any treatment he cannot come for the regular transfusions? I asked: “What do you call the sympthom?” He said: “Bleeding”
My father does not want to give up and wanted more treatments or something done. He asked doctor for another rounds of chemo or something else. Doctor got agreed to administer MYLOTARG. We also got a second opinion where doctor mentioned VIDAZA. We are still trying to learn more about both of them. I would like to hear from someone about MYLOTARG. Please share your concerns.

[Author]

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