MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Short of Breath #36209
    Matthew Johnson
    Participant

    My father has MDS and suffers shortness of breath. Sometimes it is so bad that he passes out or falls. Transfusions of RBC help, but he has also been diagnosed with fungal pneumonia. The combination of low blood counts and lung problems is difficult. He becomes symptomatic with hemoglobin below 9 even though he was always active and even playing tennis until a few months ago. Health care providers should be encouraged to treat based on symptoms and not simply a number.

    in reply to: Would like to hear other's experience with dacogen #29282
    Matthew Johnson
    Participant

    my father starts Dacogen on Monday for first time, low platelet count and blasts in the 30s
    I am wondering how they choose between Vidaza and Dacogen, but both seem to fall in the same class of drugs.

Viewing 2 posts - 1 through 2 (of 2 total)

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