[peggyp26]

Hi Terri
I live in Kissimmee and have been going to Celebration Hospital. My story is very common. I moved here and ended up without health insurance. I finally found help after being admitted to the hospital by the E.R. I was referred to Moffett hospital and the Drs. jointly decided I should use the Vidaza because I may be a candidate for a BMT. Thank God for my caring Dr who helped me in every way he could before I had the means to pay.
I am now on disability and a share of cost Medicaid program.
peggy

[peggyp26]

Hi

I start my 4th cycle of Vidaza on Oct. 5. I have had wonderful results since first round. Before Vidaza I needed platelets every three days and blood at least once a week. My platelets have been as low as 1 prior to treatment. As of my last CBC my platelets were 219, WBC 8.5, RBC 3.71, HGBN 12.1, HCT 36.5. I have been told I have MDS/CMML probably as a result of Fludarabine treatment years ago. I feel a little tender at injection sites and a little weak for a week or so afterwards. Well worth the minor issues for these results.
Hope this info helps you.
Good luck
peggy

[peggyp26]

Hi Franm

I have had the same results with my Vidaza treatment. After my first round [7 days of 2 shots and 3 weeks off] I also got a bad infection and was in the hospital for 10 days. After I got home I was on 4 different antibiotics and IV therapy for three weeks which delayed my starting the second round of Vidaza. This cycle my doctor has also cut back on the Vidaza by 25%. My shots are in my arm, stomach and legs. It can get pretty sore. Glad to hear that your husband is doing better.
Good news. Had my CBC today and my counts are still going up. In 3 days my WBC has gone from 4.7 to 9.6 and my platelets from 143 to 159.
Thank to all for sharing all your personal results with this drug.
God Bless

[peggyp26]

Hello
I just found this forum and was glad to see posts on Vidaza. I completed my first round in June. I showed what I thought was amazing results except for a bad infection because of low WBC [.67]. Before Vidaza I was going every three days for transfusions of platelets and about every sixth day I needed blood. My platelets were as low as 1 and usually were around 6 or so on transfusion days. My latest bone biopsy showed that Vidaza killed off a lot of the bad…I just started cycle 2 today. I almost did not want to take it…you see my platelets are up to 149 and my HCT is hovering around 28. WBC is 4.7. YEAH!It has been 5 weeks since I have been transfused. I guess another round is supposed to make my results even better. I just hate the thought of dropping counts again. Sorry for rattling on but it is nice to be able to share my Vidaza news.
I am in the process of looking for a match for a BMT. Maybe this will buy me some time. A BMT really scares me.

DIAG:CMML in April of this year. DIAG: NHL in 1999.

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