MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 2 posts - 1 through 2 (of 2 total)
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  • in reply to: new #8654
    rabbit
    Member

    Paula,

    Hi there, I was treated and still am being treated at MSKCC- Memorial Sloan Kettering. I thought they were great, and my docs were wonderful. I had MDS, RAEB, blasts were about a 12%-progressing into AML if not treated. I was going for tx about 2 times a week for plats and red blood. I eventually had chemo and then a stem cell transplant all done at MSKCC. I’m just shy of 17 months post-transplant.

    Let me know what you decide and where you end up going.

    Rabbit

    in reply to: transfusions #8548
    rabbit
    Member

    Sarah,
    WOW!, yes I had 2 bad reactions. One time from red blood, about 30 minutes after the transfusion, thought I was fine to go home. I was in the car but started getting a rash. Ran back up to the transfusion room and they watched me for an hour and gave me tylenol and benadryl. I was always given that stuff even before my transfusions. Another time was in the hospital. I was gettting platelets. I started having a reaction about 30 minutes into the drip. My body started shaking, confulsing, had a fever. The nurse couldn’t get my oxygen count on my fingers or toes so I had to start using the machine. What fun!, actually it was a really scary event.

    rabbit

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