MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 1 post (of 1 total)
  • Author
    Posts
  • in reply to: New Diagnosis – Questions for Doctor? #66799
    Rok Gerl
    Participant

    Hi Marie,

    Thank you very much for the thorough reply. Like you, we are all very disappointed at how the doctor chose to inform my dad along with the timing (and then made it sound as though it wasn’t overly imminent when my dad asked when he should meet with the specialist). I understand that a physician does have to distance themselves a bit when having to hand out news such as this but still…

    These are all great questions that I will pass on to my dad. I agree, I don’t know how knowledgable the family doctor will be but I’m glad that my dad will be able to meet with someone and advocate for a referral to a Center of Excellence as well. I looked online here as well and noticed that we can put in a query for an appointment as well so I think I will do that (despite my dad saying to wait…I’m not really interested in waiting just because the healthcare system is so inundated in Canada. My thought is, the sooner, the better). My mom will be able to accompany him to his appointment but I worry how helpful she will be (sometimes she can be a bit of a disaster with this sort of stuff). Sadly, both my sister and I live 8 hours away and so I’m not sure how many times we will be able to go with to help, but I would like to be able to when I can.

    If you think of anything else, please let me know! This post has just been so helpful and I really appreciate you taking the time to reply.

Viewing 1 post (of 1 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert