MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Sexual intimacy with high risk MDS #66728
    Carrie Duff
    Participant

    Thank you Ashley! Yes, all those points you mentioned must be kept in mind. Russ does have pancytopenia with characteristically low counts,is doing 7 day vidaza chemo and is red and platelet transfusion dependent at this point.
    It is very disheartening for us, when he was always so vigorous prior to diagnosis.

    We are looking to get more guidance as to very specific activities, with his male MD oncologist, Somewhat puzzling, we have gotten the extreme (to us) no sex recommendation from his female NP. At this point we are proceeding with caution and abstaining throughout the chemo, pending discussion with the MD at the start of Russ’s next chemo cycle. It has hurt us psychologically, however, to feel restricted and/or conflicted about what may be appropriate or “allowed”. Thanks for bravely responding to this post!

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