MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: How do you feel with Decitabine treatment? #44991
    Keith Scovell
    Participant

    I have been taking decitabine since March of last year – part of trial to get FDA approval for oral caplets – believe trial should be completed this summer, hopefully making the caplet available. My initial experience with decitabine was needing both platelets and red blood transfusions. I did infusion as part of trial, however was in hospital so they could collect all of the blood data – I do not have any major reaction from the decitabine – less toxic than other chemotherapy – you should be able to drive yourself.

    Most importantly – the treatment has moved by blood counts much higher! – but only after several cycles – good luck and God bless. Keith

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