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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • May 18, 2005 at 5:22 pm in reply to: Revlimid – anyone heard of this? #6293
    sgoodman
    Member

    I tried Revlimid in a trial with the Mayo Clinic and it started to help towrds the end of the 3 month trial, but the trial protocal required that I be taken off the trial. The side effects were fairly mild for me. It is my understanding that it is used for any MDS, whether 5q or not (I am not 5q), but the dramatic results discussed in the article occurred only with the 5q group. I am now on Thalidomid, but is the parent drug of Revlimid and it is working a little.

    January 31, 2005 at 6:44 pm in reply to: Thalidomide or Revlimid [Del 20q] #3472
    sgoodman
    Member

    To add to my prior post, I was on revimid for 3 months and it had no effect.

    January 31, 2005 at 6:41 pm in reply to: Thalidomide or Revlimid [Del 20q] #3471
    sgoodman
    Member

    Hello. I am on Thalomid now (at 100mg per day since November) and it is working well. The side effects are manageable. I have MDS-ra and myelofibrosis. I am 41.

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