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smfallen
MemberEve & Jack & Jack- thank you. Eve is right – going to Manhattan from LI often is too hard on my father. My Dad is 71. He is probably going to have a blood transfusion tomorrow, even though he was not scheduled to go in until Thursday for more tests. He is currently not on any meds.
Another complication is that his spleen is enlarged – which it has been for a while – and he is in pain b/c of it. I am told he doesn’t have enough platelets for surgery and b/c of his low platelets it could be very dangerous if it bursts.
I don’t know about his neutrophils – I will ask.
I am in Chicago, and he and my mom insist I don’t need to come home now, but maybe I should. Still hoping. Thank you all for your support and information.Shaena
Memberhi eve –
thank you. my dad is in long island too – part of my frustration is that i am in chicago and not able to attend all his appointments with him.
he has not had any transfusions; the hematologist (local – not dr. silverman) told him to come back in a week and do another blood test.
when an infection lowers hgb in mds patients, do the numbers ever rebound?
Thank you again. I am really so grateful for this forum.
S
MemberHe also has no blasts…
MemberHI Alice –
MY father has MDS with remarkably low platelets – you mention certain foods destroy platelets. Can you tell me what those are or where to find a list of them? I hadn’t heard that before and would like to know…
Thank you!
MemberI also should note that the doctor recommended no treatment for now, but another bone marrow aspiration in september. this sounds like good news to me – i hope. thanks again!
MemberThank you all for all your help. I don’t know the numbers yet, but I do know that my dad is a 70-yr old diabetic who was daignosed in intermediate-1 phase on the IPSS scale for MDS. He is asymptomatic, other than the blood test revealing what he called “a sever decline in platelets.” He has one of the best doctors for MDS (my dad is in NY). I am hoping that you are right about progression to AML. i am concerned that he will have severe bleeding at some point, but obviously I have more questions to ask. Thanks you all so much! Information is key.
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