MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • in reply to: Oncologist says there is nothing more they can do. #22129
    sherry
    Member

    Dad is 74. He had a bone marrow done last April when he was diagnosed with RAEB-2. The cytogenics showed multiple chromosome abnormalities and 10% blasts. There was a number on his labs last week that showed 7.53 blasts in his peripheal blood. We are taking him to Simon Cancer Center, Dr. Larry Cripe in Indianapolis. The clinical trial is two cancer meds called Nexavar amd Zolinza taken together for 7 days. He will have to have another bone marrow before he begins. We were told induction chemo was not an option because of his age. I will add that dad has no other chronic health problems and has always been in good health until this happened.

    in reply to: MDS to AML #22126
    sherry
    Member

    Many hugs to you. This is such an awful disease and there are so many things about it that I don’t understand. Dad tolerated Vidaza very well and had no side effects. I hope your mother gets to try it.

    in reply to: MDS to AML #22088
    sherry
    Member

    Thanks for your reply, I hate to hear that your family is going through the same thing. This is such a horrid ugly disease. My dad gets a blood draw this morning. I am hoping that his white cells and blasts have come down. What is crazy is how fast this moves. He had blood work on March 13 and all was stable then 8 weeks later this happens. Dad says he isn’t doing the clinical trial. It involves him having a lot of frequent tests and he says he just isn’t doing it. Here’s hoping for good news today. Keep me posted on your mom. I hope the Vidaza helps her. I wish we had of insisted that Dad continue the Vidaza. His doctor wanted him to have at least 9 cycles. The only side effect he suffered was pain and swelling at the injection site. Each time his numbers would go low, although not severely low and then rebound a little higher. Prayers for your mom.

Viewing 3 posts - 1 through 3 (of 3 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert