MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Just diagnosed with MDS (still young) #15079
    Pamela Ann
    Member

    How can I say Thanks to the quick and carring response. I have only had one bone marrow done biopsy and am being scheduled in a week or two for my second. My white blood count is app 2.4. The doctor that I am seeing is a hematologist. I really don’t understand any of this yet, but I hope to educate myself. I have been told that my daughter’s could be a 20% chance of a match. I was also told this by a nurse at ST Margaret’s Hospital in Toronto, Canada. I have 2 sister’s and 4 brother’s, but asking them to help is asking to much. Unfortunately that’s the kind of family I have. Just after my bone marrow biopsy I was in a car accident and injured my back. I am needing surgery, but the hematologist I am seeing is concerned. White blood count is very low and chance’s of an infection could set in. I know absolutely nothing about MDS and would like to educate myself. So if anyone can help it would be wonderful. Neil you seem to have alot of knowledge and I believe that the best education come’s from the people who have it.i would like to tell you all that if there is anything I can do for you, please ask and I will try my best. Even just to talk. Friends can be the best medicine….Neil I will be sure to ask alot of questions from the Dr. There were alot of low levels with my blood test and that is the reason a bone marrow was done. I wasn’t given any number’s except for my white blood count.I was in shock when the doctor gave me the results, so alot of what he said is a big blank to me. Drove home and was afraid to tell my family. We just lost 2 grandparents in a 1 month span. We are trying to heal from our loss. Is ther e any books that I can purchase? All the help would be great. Thanks to you all.

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