MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: The Final Days #46390
    Gail Sumerfelt
    Participant

    Rose: I totally understand how you were feeling alone even when he was still alive. Some days are better than others, but he really has little quality of life. He is still able to go have coffee with friends, but nothing else. He was going to our cancer center three to four times per week, but now it’s down to twice a week.
    Thank you for your information. I truly appreciate it.

    in reply to: The Final Days #46388
    Gail Sumerfelt
    Participant

    My husband had a stem cell transplant for his MDS on October 3rd, 2017. Our story is a long one,but I will keep it short. The transplant was unsuccessful and so were the booster-cells last July. We were so hopeful with his brother being a 100 % match.
    He gets weekly blood, platelets and growth factor shots. His counts are hemoglobin generally below 7, his platelets have been as low as 1000, his anc .50. His white blood count jumps around from 2.5 to normal at 5.0. He does sleep on and off most days and has no energy. He has chosen to continue this supportive care until it no longer works.
    I have asked what to expect and no one seems to known exactly. I pray for his sake that when his time comes that he just goes to sleep peacefully. He has suffered enough.

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