My husband had a stem cell transplant for his MDS on October 3rd, 2017. Our story is a long one,but I will keep it short. The transplant was unsuccessful and so were the booster-cells last July. We were so hopeful with his brother being a 100 % match.
He gets weekly blood, platelets and growth factor shots. His counts are hemoglobin generally below 7, his platelets have been as low as 1000, his anc .50. His white blood count jumps around from 2.5 to normal at 5.0. He does sleep on and off most days and has no energy. He has chosen to continue this supportive care until it no longer works.
I have asked what to expect and no one seems to known exactly. I pray for his sake that when his time comes that he just goes to sleep peacefully. He has suffered enough.