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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • October 30, 2018 at 5:02 pm in reply to: Mortality rate MDS RAEB II #44321
    Tom Peers
    Participant

    Amy – The stats mentioned in the link for survivabiliy we’re done with 161 people. That’s a very low sample size. I am amazed at the study didn’t include thousands.

    October 30, 2018 at 10:52 am in reply to: Mortality rate MDS RAEB II #44319
    Tom Peers
    Participant

    Thanks for the info. A week from today I have an appointment with my BMT doctor at Mass General (Boston). I will ask for a more definitive mortality rate, although they’re always reluctant to say. I’ll explore the link you posted.

    I am and do stay close to God, and either way (cure or heaven), I don’t have any concerns or worries. Grateful for the God connection through Jesus Christ.

    Thanks!

    Tom Peers

    October 24, 2018 at 10:36 am in reply to: Mortality rate MDS RAEB II #44283
    Tom Peers
    Participant

    Yeah, that calculator doesn’t take into account a stem cell transplant, so my Dr. told me to not pay too much attention to it. It’s very hard to get a accurate statistic on this, one that includes a stem cell transplant.

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