My husband has been diagnosed with MDS for 15 years and three years ago they gave him 5 years. He has done one clinical trial which put him in remission until this year . His hemoglobin hangs in around 8 now he receives blood when it goes down to 7 his plalette are around 50 really low white blood and high red blood count and a ferritin of over 6000 because of all the blood transfusions now he is doing Defferral two times a week to lower the ferritin count . They just told us last week he can not have a bone marrow transplant because he has had strokes and he has a leaky heart valve and a rare blood type he has AB positive. No donors avaialabe so we are now looking for a clinical trial my husband is all of 67 years old He’s tired all the time and when his blood goes down to 7 has shortness of breath I really hate this disease! Thank you for letting me share
