Mark,
I am in a similar situation – diagnosed with MDS, but I have no caregiver or family. I have spent many a nights wondering what I will do – relying on Uber, bringing in help…I refused transplant for that reason. If I have trouble getting to chemo treatments, it is not likely that being able to have someone take over your life during your transplant recovery is a realistic option. I am terrified on a daily basis – I receive the Vidaza infusions as well as a study drug, Entessenanib. My quality of life is horrible and there are times that I wish I lived in a right to die state when I become unable to care for myself. I am so glad that someone brought this topic up…it is so helpful to know that there are others who are dealing with this.
Vicki
