[wjw50]

Medicare at this time does not cover bone marrow transplants. If you do get Medicare get a supplement ins. it will take down some of the cost. Call Medicare and Social Securty. Good Luck, and God Bless

[wjw50]

Depression can go along with MDS or any other cancer diagnosis. I would try to find a support group. I have MDS and mine is not all that good. Have not had transplant yet, but see it in the near future. I live in northeast texas and there are no support groups here . I have to depend on my family for support. Good Luck and God Bless.

[wjw50]

my rbc’s have been enlarged and abnormally shaped for 5 yrs, I have myelodysplastic syndrome and was diagnoised 5 yrs ago. I have no liver or other organ problems. I am also a nurse, that being said I understand where your mom is coming from. I am only 53 and did notify my family asap. They do need to know . I also take b12 inj. and my transplant doc is doing the wait and see thing. I have been pretty stable for several yrs now but things are changing for me as of Oct. this yr. Good luck. Be sure to speak to the doctor and get lots of info.

[wjw50]

I was diagnoised with MDS in 2006, I have not received any treatment, my doctor is a wait and monitor type guy. He does bone marrow aspirations 1 time a year and I see him every 6 months and I see my hemotologist every 6 months so I am monitored every 3 months between the two of them. I have had to have 1 iron infusion done due to no iron in my bone marrow. I am tired very often. Have had no other transfusions.
I have depletion of chomosome 7, and have low wbc’s and platlets, and an enlarged spleen. They consider me a 1.5 on the scale. I am typed for a transplant if needed. So far this works for me.
Although being a nurse and knowing the odds and all the blood counts so well. It is still scary.

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