MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: ESA #18469
    yvonne
    Member

    Zoe,
    Thank you so much for the info. I wrote a letter and hand delivered it to our local Congressman asking him to urge the committee member from Virginia to support the letter and to oppose the CMS plan. The Congressman’s staff was very interested and had not heard about it until then. I also called the Virginia representative on the committee and asked my friends and family to do so also.

    Thanks again.

    Yvonne

    in reply to: ESA #18467
    yvonne
    Member

    I am new to the forum and joined primarily to find out about the CMS devastating proposal to stop funding ESAs for MDS patients. My husband’s life was saved by Procrit when he began treatments in February 2007 and now he may be in danger again. His hematologist didn’t tell us about the threat until a regular July 16 office visit! And he has already cancelled all future treatments. Since we missed the public comment period, is there any use in appealing to our congressional reps? Is there anything we can do at this late date?

Viewing 2 posts - 1 through 2 (of 2 total)

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