[Frankiesue71]

After reading more posts, I think she may have been getting Vidaza, after all. I think I blocked it all out! We had lost my aunt, my mom’s sister, in November 2004 to cancer. So by the time my mom was diagnosed, struggled for awhile, and then passed away, I was pretty burnt out emotionally….

[Frankiesue71]

My mom was getting transfusions of plts, wbc, and rbc about every other day. From what I’ve read, transfusions that frequently is pretty extreme. It seemed like every couple weeks is more common.

[Frankiesue71]

Hello,
I just joined yesterday, and read your post today. I just wanted to say how sorry I am. It sounds like the same thing happened to your husband that happened to my mom. I hope you hang in there..

[Frankiesue71]

Thank you for responding. We named him Seth Aaron, after my mom. I’m Jewish, and in certain portions of the Jewish religion, when a loved one passes away, you name a baby after them. Not neccesarily exactly after them, but at least using the first letter of their first and/or middle name (especially in this case, since I don’t think a boy would enjoy the name Sharon Arlene, which was my mom’s name!). In Hebrew Seth means appointed one, and Aaron means exalted.

I noticed reading this forum that most people seem to do much better, and hang in there quite a bit longer, than she did. She always had a good attitude about it though. Very matter of fact, she said she wasn’t going to let it take over her life. She just did whatever treatments the doctors recommended and tried to go about life as usual. I think it gave us a false sense of security, because she acted so normal; it made it easy to forget how serious what she had was.

I believe what she was taking was Procrit. The name rang a bell when I read it in other posts.

Seth is a very happy baby, so I think my mother is watching out for me! She made sure I didn’t get one that was colicky all the time….

Thank you again for responding. I hope you continue to have success with your treatment!

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