MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • in reply to: Christopher is now with his Dad #9392
    Gerri S
    Member

    Marie,
    I am so saddened by your loss.When my brother passed from AML, his wife had him cremated.My parents asked to have a portion of his remains buried at our family plot.He has a beautiful marker along with my Dad,who passed from MDS a few years after my brother. I pray that the Lord will be with you and comfort you. Gerri S.

    in reply to: Revlimid FDA Review #6722
    Gerri S
    Member

    Please add my name,Thank you
    Gerri Simkins
    Pilesgrove,NJ

    in reply to: Mds and hereditary? #4694
    Gerri S
    Member

    Whether MDS could be herediary is a question that nags at me often.My son,as an infant, had ITP,which I was told was a reaction to a virus he was exposed to.He was treated and fully recovered and is now a healthy 12 year old. My brother died of AML at the age of 39 and my Dad passed from MDS at the age of 66. I would like to believe that this is all a horrible coincidence. If anyone has any information regarding this I would be interested.

    in reply to: Has anybody heard of ITP? #4188
    Gerri S
    Member

    ITP stands for Idiopathic Thrombocytopenic Perpura. It is the destruction of platelets for an unknown reason. Usually it is of sudden onset
    and most often a result of a virus.It is treated with a course of steroids after which the platelet count returns to normal. It can ,at times, turn into CTP or chronic thrombocytopenia perpura. Treatment is steroids and frequent platelet cout checks and in the most severe cases a spleenectomy(removal of the spleen). As far as Im aware a BMB is needed for an accurate diagnosis and to rule out other disordres that may also affect the platelet count. I hope this helps.

Viewing 4 posts - 1 through 4 (of 4 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert