MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 31 through 34 (of 34 total)
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  • in reply to: My BMT #3393
    Laural
    Member

    Jim,
    Caringbridge.org has free websites that can do just that…with space to put up daily or regular updates. Many are children, but they are available to all and have places for photos, links, etc. Some are quite elaborate and they are great for those in treatments or quickly changing situations to keep family and friends up to date in a most efficient way.
    Laura

    in reply to: How he feels……. #3093
    Laural
    Member

    My “magic number” is 7. I exercise regularly and try to maintain exercise even when the counts drop a bit, which I think helps. Much below 7, though, and I wipe out. It is very different for each person though.

    in reply to: Secondary MDS #3180
    Laural
    Member

    I had acute lymphocytic leukemia in 1986, achieved remission in 1987, then had secondary MDS diagnosed in 1992. I have been on several different chemo trials, and have been able to keep the disease in check that way. Currently my blasts are low and I am not needing any transfusions to support the blood at all.

    in reply to: Info in signature …. like Carrie #2761
    Laural
    Member

    Adding to the profiles…hope you are all finding blessings in the New Year.
    Laura

Viewing 4 posts - 31 through 34 (of 34 total)

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