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Yes! My mother was DX with MDS in January and her hematologist told her recently that Medicare will no longer pay for the Procrit. I have been trying to decipher the Medicare information and having difficulty doing so. Any help would be appreciated!

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iS THERE A CENTER OF EXCELLENCE IN TEXAS? PERHAPS M.D. ANDERSON?

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My Mom was recently DX with MDS RAEB-2. SHE IS SO WEAK AND LOOSING WEIGHT RIGHT NOW. WE ARE SO WORRIED. SHE IS CURRENTLY TAKING PROCRIT AND PLANS TO START DACOGEN IN THE NEXT 3 WEEKS OR SO. I AM CONCERNED ABOUT THE SIDE EFFECTS AND IT LOWERING ALL 3 CELL TYPE COUNTS. HOW DO PATIENTS ACTUALLY DO ON THIS DRUG? DOES ANYONE HAVE PERSONAL EXPERIENCE THEY CAN SHARE? MY SIBLINGS AND I ALL LIVE A DISTANCE FROM MY PARENTS AND ARE WORRIED HOW MUCH SUPPORT SHE WILL NEED ONCE SHE STARTS TREATMENT. THE DOCTOR WILL TELL US VERY LITTLE.

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