[Susan C]

My sincere wishes that everything goes well for you dad.

Susan aka britt

[Susan C]

My prayers and loving energy go out to you limitlessly.

Susan

[Susan C]

Lucy,
He isn’t eating at all. He can’t swallow for some reason. He has begun choking on water. Spitting up sputum. I am hoping they will xray his esophagus and do a culture on the sputum. He asked for something to eawt today, but could barely get a bite down. It hurts when he swallow, I want to know why. The doctors need to address that.

Thank you. I am going to work on this platelet thing. I need to rent a lap top for the hospital so I can keep in touch.
Love to all
Britt aka Susan

[Susan C]

Thank you soooooooooo much. I am printing this out and taking it up to Patrick and his sister. This is such good news. Thank you for sharing. A thousands times thank you. I will let you know what they do with this information.
God bless you!
Britt aka Susan

[Susan C]

We waited too long for an alternate avenue. Patrick had to quit Revlimid in May because his plts fell to 32, then 22, then 8. The oncologist didn’t treat him with anything. The day he was supposed to go to Stanford he was too sick and had to be taken by ambulance back to Kaiser. A blood test showed 35% blasts. They said it had turned from RARS to critical AML One hematologist said he should start dacogen (that was 7/3), but Kaiser decided to bypass that until he went to Stanford. Thank you Kaiser. They put him on Chemo for 7 days. Today is his first day without Chemo. His stomach is distended and his colon is enlarged and inflamed, he can’t eat…..he is getting plts, blood and plasma. They give him a 20% chance to live. I know I have not helped. But, I encourage you to keep asking people. No doctor is God. I wish you well.

Britt AKA Susan

Patrick was dx march of 06 with MDS secondary to non Hodgkin’s lymphoma.

[Susan C]

Dear Suzanne
Thank you so much for your words that give one so much hope. The doctor said today that Patrick’s AML was the worst kind possible because the MDS was caused from the chemo/radiation treatment for his non hodgkins lymphoma. Do you know of anyone who has come through this kind of Luekemia? Greedy over here for even more rays of hope. Thank you once again.
Susan aka Britt

[Susan C]

Dear Patti:
I understand how you feel. I am spending 18 hours a day at Patrick’s bedside. I will pray for your MIL, could you please let me know her name? I’m relatively new on the forum so I don’t know. May God bless and keep her strong as well as her loved ones.
Britt aka Susan

[Susan C]

To everyone: Patrick is on his 7th day of Chemo tomorrow. He said he wanted to go home yesterday, so his sister insisted his doctor tell him what would happen if he did leave. He decided to stay. His vital signs are all good, but they still don’t understand the distention of his stomach and bulging sides even after doing a cat scan. His colon and spleen are swollen. They said Chemo would take the swelling down, but we haven’t seen it yet. Other than that…..he feels totally rotten as everyone who has had to go through this does. He is also depressed with good reason and I’m afraid not very hopeful. If anyone cares to send him well wishes his address is as follows:

Patrick Leighton
C/o of Kaiser Hospital
401 Bicentennial Way # 1B
Room 415
Santa Rosa, CA 95403

[Susan C]

FROM BRITT
Hi this is Britt again, I lost my password for Britt….. . They said it was a blood test they had given him and the immature cells and blasts that showed up, but no one gave any details. Supposed to be a special blood test. He was transferred to another Kaiser facility because they had no beds in Santa Rosa. I asked for the summary the ‘Hospitalist’ (never got to meet the oncologist although I spent the night, he came after I left in the morning) had written up to send to Kaiser as they are in the process again of transferring him back to Santa Rosa. Suddenly the printer wasn’t working……how convenient. I don’t know what information I need to give you (Neil) that might help you help us. Tell me what to ask, and his sister, Vickie, and I will do everything we can go get that information from them.

He went into the San Rafael Kaiser with a fever……the doctor said he didn’t have one when he came in…….the nurse said yes he did it was 101.3. He said even if he had a fever, he wouldn’t know what kind of antibiotic to give him since he couldn’t know the source of the infection. I explained that this happened once before and the ER doctor…..just gave him an antibiotic that would take care of everything. He came out of it fine after the antibiotic and a unit of plts. He has been having severe pains (starting Monday before his infusion) on the left side of his chest down into his abdomen. He says he hasn’t had a BM in days, but xray showed no blockage and very little fecal matter. He hasn’t been eating. Then the hospital he was transferred to repeated all the same tests he had earlier in the day. Oh, the Santa Rosa Kaiser said the blood test showed his MDS had turned to Leukemia. This is all I can tell you now………when I have more, I will write.

Lucy! You really helped give Vickie some hope. You were so wonderful, you are all wonderful. I can’t thank you enough for all your help.

For Patrick…..

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