Forum Replies Created
-
AuthorPosts
-
Vance
MemberMy wife, Ruby was in the process of going to Seattle for a possible BMT, but without insurance, they wanted around $250,000 up front.
They would not accept Ohio Medicaid so needless to say, we didn’t go.
She did however, recieve a cord blood transplant at University Hospitals in Cleveland, Ohio, and is doing quite well now.MemberYes, Dave. Awhile back my wife Ruby recieved 2 bags of platelets, the first went fine, but the second made her very ill, pain, shortness of breath, and bad nausea. They did give her benadryl and something else before, but she still had a reaction. This is the only time that this has happened.
MemberKaren, Ruby’s match was a 4/6, but there are plenty of back-up donors. I can’t remember how it was found, but the doctors still today are watching closely in case it comes back. She also has something called VRE, but it doesn’t seem to be as serious.
Her biggest hurdle now seems to be the nausea and vomiting and inability to eat.MemberHi Cheryl,
Yes the staff and doctors are very comapassionate at UH. I see I was wrong in assuming that the transplant signs were only for cord blood though.It is good to hear from someone else that is going there. My wife’s brother is living in Canton, so that is where she is staying while she is doing the outpatient visits. Our home is actually in Gallipolis, Ohio. It is a small town in southeastern Ohio. Very glad to hear from you and prayers go out to your family.MemberHi all, I am sorry I have been away again. Working out of town and hustling kids back and forth to basketball doesn’t leave me much time.
If I can remember correctly, we first went to Cleveland in July, to meet with a Dr. Lazarus at University Hospital. He made it clear from the start that cord blood is just as risky as bone marrow, but the risks of GVHD would be more likely. He felt that given Ruby’s age (40) and that she was first remission that she did have an opportunity to maybe beat this thing.
They did a multitude of tests and found a rather large donor supply for her in New York.
She entered the hospital in early Nov. She then recieved a relatively small amount of chemo, and total body irradiation. Her transplant is called a “mini” but, I cant remember the exact term.
She has been very nauseaus (sp?) just as when she had induction chemo in the spring of “04.
I have to say that I was surprised at the number of cord blood transplants taking place at Cleveland, she was on the unit and there must have been 12 or more doors with signs that said “Happy Transplant Day!” on them.
She is doing well, hospital visits cut back to 2-a-week now, with no I.V. port.
she is 72 days post transplant. Has lost an incredible amount of weight.
Cord blood seems to have been a wonderful option for Ruby. I hope I can help anyone, but my memory kind of fails me with some of the details.
God Bless You AllMemberDoreen, my wife Ruby recieved a cord blood transplant on 11/12/04 at University Hospital Cleveland.
She had undergone total body irradiation as well as chemo to prepare for it.
As of now she is doing great, as been out of the hospital since 12/17 but has to go in 3 days a week to have blood checked and recieve magnesium.
No sign of GVHD as of yet.
She took this option as there was not a suitable bone marrow donor available for her.
Dx”ed MDS 4/03. Trans to AML 1/04 -
AuthorPosts
