[chuck rau]

Was the chemo drug your father received Vidazza?

[chuck rau]

Bruising is consistent with low platelets and the sudden severe headache with the low hemoglobin count. MDS is verified by a bone marrow biopsy.

There is no cure for MDS. My doctors tell me foods do not help or provoke MDS since it is a malfunction of the bone marrow where the cells produced are mutated and do not function as they should. Vidazza is a chemotherapy drug that helps some, once the diagnosis is confirmed MDS.

[chuck rau]

The main risk related to blood transfusions is iron overload. There is good information about iron overload on the internet. When you say 2 transfusions a week, do you mean 2 units of blood at one sitting, or two separate sittings? My doctor tells me she has transfused every other day to keep one alive. Unfortunately, a time comes when a transfusion no longer raises blood counts. When that happens you are looking at 2-4 months depending on your hemoglobin count when the transfusion fails.

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