MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Agent Orange #58313
    Dale Reagan
    Participant

    Update on my husband:
    He passed away last Thursday June 9,2022.
    His last transfusion was on May 31 at the ER admitted overnight. His hemoglobin count was 5 so he was given 4 units of blood. After that he had one good day. He was so weak he probably wouldn’t survive another trip like that & opted for hospice and passed away 2 days later. It breaks my heart this terrible disease took him. And I blame Agent Orange for starting this horrible roller coaster from bladder cancer, chemo and down to MDS.

    in reply to: Fevers, multiple transfusions #58156
    Dale Reagan
    Participant

    No the doctor said since he had bladder cancer and only one kidney he wasn’t a candidate for transplant. The way they talked was at this point it’s too late because I asked if he could get one. Doctor specifically said there’s nothing else that can be done other than transfusions.

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