MDS is a bone marrow failure disorder
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • February 9, 2016 at 6:21 pm in reply to: Bone marrow surgery at 65 #29232
    sherry luhn
    Participant

    ray……that is why I am not considering BMT. hopefully, VIDAZA WILL keep working.

    February 9, 2016 at 6:14 pm in reply to: New Vidaza Patient #29231
    sherry luhn
    Participant

    I am finishing my fourth round of vidaza. Mt platelets are normal…. Hang in there. My chemo nurse said wait until the 3rd round until you see a change in your body and counts…The first 2 rounds were so hard physically. I could not work much( standing in a pharmacy). I am so much better- just get tired after being busy…. Hang in there!

    January 29, 2016 at 8:58 pm in reply to: Bone marrow surgery at 65 #29181
    sherry luhn
    Participant

    Ray.

    How long were you in the hospital. My husband works lo ng hours and cannot be my support. Did you go straight home from hospital? I thought 65 was too old…. How great for you. Are you totally healed? My scare was the chemo and radiation. What about infections?

    January 28, 2016 at 8:16 pm in reply to: Bone marrow surgery at 65 #29166
    sherry luhn
    Participant

    Yes, I don’t know why I called it surgery. I am high risk mds. I am getting ready for my fourth round of vidaza. I can finally go to work where I stand most of the day at a pharmacy. I said I would never even consider this transplant because of the chemo and radiation. It seems you are almost dead before you get the transplant. Of course at my age, the increase of infections. One family member really is pushing me. Ugh…so hard. how old are you?

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