MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: WBC Pill #16066
    VA Gal
    Member

    Harold,

    Thanks for the info. I’ll check it out.

    Good to see your blast count is down. Hope things continue to go well for the BMT.

    I see that you had 25% blasts in Aug. I’m trying to determine if mom has AML. She can’t have a BMB, but the lastest blood work shows blasts at 47%. Do you know what blast percentage in the blood indicates AML?

    in reply to: aml #15990
    VA Gal
    Member

    Thanks for the explanations and the websites. This has helped me to understand some of what the dr was talking about. Seems like it is a never- ending learning process.

    Mom didn’t feel too well yesterday and today-no energy. She is headed to the hospital in the morning to get a CBC to see what’s going on.

    in reply to: aml #15987
    VA Gal
    Member

    Terri,

    I’m still learning about all of this. What are the grans?

    Glad to hear Bob is doing well on Vidaza and has been TX free for a while.

    in reply to: aml #15985
    VA Gal
    Member

    Hi Patti & Chris,

    Thanks so much for responding so quickly. Your information was very helpful and the website has provided me with some answers. It appears from your experiences Patti, and the info from the website, that things are probably not very good with Mom. We did see a specialist in Oct from MCV Bone Marrow Transplant division for a second opinion. Mom wanted to try Dacogen, but he said she wouldn’t live through it. I asked about the high WBC level and he said it could be an indication of leukemia. He suggested doing the 5-azacytidine treatment again and he did not recommend doing another BMB. He said it was a quality of life issue.

    I guess we will see how Mom responds to the 5-azacytidine treatment. She will get another CBC on Thursday and hopefully we will get the results from the last blood tests.

    Thanks again for being so helpful. I just found this website. It helps to know there is a place to come to with questions and for answers from others that are going through a similar situation.

    I hope you have had a good day.

Viewing 4 posts - 1 through 4 (of 4 total)

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