MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: Alternative treatment for MDS #44055
    joanne
    Participant

    Hui Ma, I wouldn’t think Fucoidan would be good for anyone with low platelets. Memorial Sloan Kettering Cancer Center website says it slows blood clotting.

    in reply to: Alternative treatment for MDS #44054
    joanne
    Participant

    kerpaka, what brand do you use? I just ordered some from Herbal Papaya but it’s good to know about brands that have already been shown to work for someone.

    in reply to: MDS Center of Excellence in NJ #35998
    joanne
    Participant

    Thank you for your reply, Rich. I just had a BMB last Tuesday and will have some of the results back this coming Tuesday. Then I guess it’s time to make an appointment.

    in reply to: MDS Center of Excellence in NJ #35977
    joanne
    Participant

    Hi Rich. Have you chosen where to get your second opinion yet? And if so, why did you pick that one?

    My local oncologist wants me to go to Rutgers/RWJ to meet with the transplant team for evaluation. He trained there and was on the transplant team until about 12 years ago. It’s closer to where I live, too. Otherwise, I don’t know how to compare them other than Hackensack does more transplants than RWJ. Or, at least, did the years when the statistics were available.

    Joanne

Viewing 4 posts - 1 through 4 (of 4 total)

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