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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • May 20, 2019 at 10:55 am in reply to: Signs of end stage MDS #46768
    Kim Alexander
    Participant

    Hi,I’m in similar situation with
    My grandmother. 3 weeks ago told 5 to 6 months if continued transfusions. 2 weeks ago they say less. Shes tired and stopped transfusions all together. She was 6.0 and got 1 unit blood and platelets for her very last one. They said wont be long but cant say how long or what I will expect to see. Can simeone help me prepare her and me!

    May 19, 2019 at 8:38 pm in reply to: When the transfusions stop working #46767
    Kim Alexander
    Participant

    Can someone tell me what to expect once a patient and doctor decide it’s time to stop transfusions. She was every 2 weeks to every 6 or 7 days and about to start 2 times a week. Shes tired and does not want to continue. We were told she may have a couple months best case to maybe weeks.

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