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Carole Tirico
ParticipantCarole passed on July 23 @ 7 pm She was in the hosp 2 days after cemo. Dr’s seemed to be more interested in a little fluid she had around her heart than her blood problem. little by little she faded away. I just had to get on here and post. Make sure you know what they are giving you each time.
ParticipantHello Alma – just wondering how you are doing?
I have been in the hospital since Sunday 7/14/19 – platelet count went down to 1 – have been getting transfusions – hopefully counts will come up. Feel like crap – never been so sick in my life. Hope you are doing alright.Carole
ParticipantHello Alma
All went well with the chemo – no side effects yet for Monday & Tuesday, hope there won’t be any at all – I can hope anyway. Glad it went well for you except for the diarrhea.
ParticipantHello Donna
I am 75 years old and will be starting Dacogen today – I am a little anxious – I have never taken many pills and don’t like all this medication the Dr. is giving me. I have only taken a vitamin and a blood pressure pill only for many years and now all of this.
ParticipantAlma I would love to keep in touch with you also – I will be thinking of you on Monday – let’s hope these treatments will help us
ParticipantAlma
I live on Long Island also – I am starting on Dacogen on Monday also. I am also very apprehensive as to what this will be like. Where do you go for treatment? I go to NSHOA in Patchogue but will be getting the infusions in Riverhead because it is closer. Good luck to you on Monday.ParticipantThank you Michael
ParticipantHello Donna
Have you started the Dacogen yet and if so how is it going for you? I am starting on Dacogen Monday and would love to hear from you.Carole
ParticipantMichael – where is the center of excellence in New York. I live on Long Island and I have MDS, doctor has been watching counts for 4 years and now wants to start chemo on Monday, I am a little overwhelmed by all of this.
CaroleParticipantHello Peter:
Thank you for your kind words of encouragement. My husband and I are having a hard time accepting this treatment. I am not sure if I should have the chemo or get another opinion on this treatment. I live in New York. I don’t know what will happen if I don’t have the treatment. Will try to be as strong as you and hope the best for you also.
My regards,
Carole -
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