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lillian1919Member
HI Linda
My Mum had the peticiae – the purple rash – on her legs. It actually did clear up tho.She was given antibiotics as they thought it might be cellulitis too. This happened after her first transfusions. She is not very well now , was on Anaresp injections but they did not work and she feels she is too old to start chemo. Vidaza was one of the drugs the MD talked about but he does not any longer. My mother has low red, white and platelets.lillian1919MemberHi Alice
Thanks for the info, I am new to all this.
How is your Mum holding up? Is she is good spirits?
Of course there is a big difference is age, but my Mum is dreading the next transfusion. Just after I posted she told me she has had the “spells” and dizziness again today.
Thanks for writing – I am so glad I found this forum.lillian1919MemberHello
I am new to this site. My Mum will be 88 this year and has MDS, she was diagnosed 4/07. She has been having transfusions and Aranesp injections but this past week the oncologist stopped the injections as they were not helping. Now she is having labs every other week and transfusions as needed. In the beginning the MD talked about Vidaza but now he is not. My mother has many other issues and because of a complicated illiostomy, she is not able to be nausea without getting very sick. So far her medical costs have been covered by Medicare, her secondary insurance has not had to pay yet. I was wondering if the insurance companies stop paying ( they seem to have a lot of rules about elders) but was afraid to ask the question. -
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