MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • in reply to: Please help- MOM VERY SICK #18556
    lillian1919
    Member

    HI Linda
    My Mum had the peticiae – the purple rash – on her legs. It actually did clear up tho.She was given antibiotics as they thought it might be cellulitis too. This happened after her first transfusions. She is not very well now , was on Anaresp injections but they did not work and she feels she is too old to start chemo. Vidaza was one of the drugs the MD talked about but he does not any longer. My mother has low red, white and platelets.

    in reply to: transfusions? #18552
    lillian1919
    Member

    Hi Alice
    Thanks for the info, I am new to all this.
    How is your Mum holding up? Is she is good spirits?
    Of course there is a big difference is age, but my Mum is dreading the next transfusion. Just after I posted she told me she has had the “spells” and dizziness again today.
    Thanks for writing – I am so glad I found this forum.

    in reply to: Cost of Revlimid!!!!!!!!!!! #18544
    lillian1919
    Member

    Hello
    I am new to this site. My Mum will be 88 this year and has MDS, she was diagnosed 4/07. She has been having transfusions and Aranesp injections but this past week the oncologist stopped the injections as they were not helping. Now she is having labs every other week and transfusions as needed. In the beginning the MD talked about Vidaza but now he is not. My mother has many other issues and because of a complicated illiostomy, she is not able to be nausea without getting very sick. So far her medical costs have been covered by Medicare, her secondary insurance has not had to pay yet. I was wondering if the insurance companies stop paying ( they seem to have a lot of rules about elders) but was afraid to ask the question.

Viewing 3 posts - 1 through 3 (of 3 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert