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Dera Linda,

I would also like to know what vitamins you have been taking. And did you have any nutritionist/doctor advice as to what to take?

Many thanks for sharing this information,
G

[GL]

Dear Marla and Christine,

It would be great if you could continue your discussion on this board, not privately. I will not speak for everyone, but I am VERY interested in your views and information you share. On another hand, people that are not interested do not have to read this discussion.

Many thanks for sharing your knowledge,
G

[GL]

Dear Jenny,

My mother is with King’s College too (her doctor is prof. Mufti). She has RAEB as well, but they did not offer any Vidaza clinical trials to my mother or discussed mini-transplant possibilities. I wonder, why. Do you know what are your father’s blood/BMB test results? Who is your father’s doctor?

Yes, best to do now is to try to learn as much as possible and support your father through diet, etc. Do you know about Bristol approach?

Best of luck.
G

[GL]

Dear Seekay,

Many thanks! Just to clarify – I was not sure if you are suggesting that eating liver is good. Or do you mean something else?

Thank you!
G

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Dear Phyllis,

Please contact your MDS doctor urgently. This may be realted to MDS.

Good luck,
G

[GL]

Thank you, Terri, for sharing your experience. I will let you know how it goes for us.

Best to you and Bob,
G

[GL]

We are going to NY at the end of this month. Any suggestions/views would be greatly appreciated! I recall seeing on this website (tried to find that posting again, but could not!!)that someone had a second opinion from Dr Nimer – would be great to know what was the impression.

Thank you!
G

[GL]

Not an answer to your queation, Patti, but just in case this could be useful — a fast and simple way to help recognize the signs of a stroke.

THE SCENARIO

During a BBQ a woman stumbles and takes a little fall. When her friends offer to call paramedics, she assures everyone that she is fine and just tripped over a brick because of her new shoes. They get her cleaned up and get her a new plate of food and while she appears a bit shaken up, she goes about enjoying herself the rest of the evening.

Later, her husband calls to say that his wife was taken to the hospital where she passed away. She had suffered a stroke at the BBQ.

RECOGNIZING A STROKE

A neurologist says that if he can get to a stroke victim within 3 hours he can totally reverse the effects of a stroke…totally. He said the trick was getting a stroke recognized, diagnosed and getting to the patient within 3 hours.

Now doctors say a bystander can recognize a stroke by asking three simple questions:

1. Ask the individual to SMILE.
2. Ask him or her to RAISE BOTH ARMS.
3. Ask the person to SPEAK A SIMPLE SENTENCE (Coherently) (i.e. . . It is sunny out today)

If he or she has trouble with any of these tasks, call 9-1-1 immediately and describe the symptoms to the dispatcher.

After discovering that a group of non-medical volunteers could identify facial weakness, arm weakness and speech problems, researchers urged the general public to learn the three questions. They presented their conclusions at the American Stroke Association’s annual meeting last February. Widespread use of this test could result in prompt diagnosis and treatment of the stroke and prevent brain damage.

[Author]

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