MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: low white blood cells #36198
    Mary Melton
    Participant

    Mark did you get any response to this. My white blood cells have dropped from 1.4 to 0.8 as well. I have gone through 6 months of Vidaza but it did not improve my MDS, however, it kept me from getting worse. I started another type of chemotherapy by the name of Dagogen last month. I start the 2nd round on Monday. The dr says hopefully we will know if it is going to work after the 4th or 55 round. My platelets have mostly been above normal, however my red blood cells have dropped below 8 3 times and I have had to have 2 pints of blood each time. My main concern is the low white blood cells because they can’t do a transfusion for those, only the chemotherapy. I was hoping someone had experienced this and could enlighten me as to what to expect.

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