MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 5 posts - 76 through 80 (of 80 total)
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  • in reply to: Transplant #28926
    rar
    Participant

    Probably Dana Farber followed by Seattle Cancer Care Alliance. It was not a criteria that I used in selecting a transplant hospital. There are other factors in my mind that were more important.

    Ray

    in reply to: Sibling Match for MDS #28888
    rar
    Participant

    It is true that the recipient gets the donor blood type. This is not amusing when it leads to difficulties. I heard of someone who had type A blood before transplant and O after. He received a transfusion of type A as per his records pre-transplant. He died.

    I received my transplant from my sister so now my blood has changed from xy to XX chromosome. If I commit a crime and they do blood typing they would be looking for a female and I would be free.

    Ray

    in reply to: Is there anything positive? #28885
    rar
    Participant

    I was 73 when I had a transplant. Age was never discussed before the transplant. After the SCT my doctor said if in good health transplants on people up to 80 are fairly routine. My transplant was a year an a half ago. Except for a bad case of GVHD which is mostly resolved I am doing well. I had a fair number of doctor visits and tests. It involved over 500 claims to Medicare.

    Ray

    in reply to: vidaza cost with medicare #28884
    rar
    Participant

    Medicare covers what ever is medically necessary. They paid most of the $1.3 Million dollar bill.

    Ray

    in reply to: Sibling Match for MDS #28883
    rar
    Participant

    I have 3 sisters who are all 10/10 matches. I did a SCT a year and a half ago. I went through a tough case of GVHD which is doing much better. A sibling transplant is better than MUD. A female donor who bore children is worse than a male donor. All 3 of my brothers matched each other but not me. I was 73 when I had the transplant.

    Ray

Viewing 5 posts - 76 through 80 (of 80 total)

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