MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • June 1, 2021 at 9:55 pm in reply to: Luspatercept #54561
    Shirley Bowe
    Participant

    My husband is 69, been battling MDS for 5 years and started Luspatercept in December. Saw a small bump in his hemoglobin at first but has been a continual decline ever since. They have pushed the dosage to the max, and started him back on Venclexta (200mg) in addition to the Luspatercept shots. Averaging 2 units of blood per week…
    However, treatment seems so individual that the results may be great for your mother.

    June 1, 2021 at 9:49 pm in reply to: COVID VACCINE #54560
    Shirley Bowe
    Participant

    My husband had the Moderna vaccine and suffered no side effects

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