Sandi
I have just recently learned of this website and I am truly sorry for your loss. I know time heals or helps, but it’s hard. My thoughts are prayers are with you.
I too have someone with this disease, my mom who is 85. She is currently in the hospital and in terrible pain. She was diagnosed with MDS in October, 06. We learned yesterday that she was always a high risk, but now she in Leukemia. Her liver and spleen are enlarged and the doctor has put her on a chemo drug to help reduce the spleen. She is on constant transfusions as she has just received 3 units and it only brought her up to 9.9. She has developed antibiodies and it makes it harder and harder to find the blood – we had to wait 2 days for it at one point. I just hate seeing her in so much pain.
