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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 6 posts - 1 through 6 (of 6 total)
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  • June 23, 2007 at 8:58 am in reply to: MDS and kidney failure #18520
    tasmith123
    Member

    I hope that your father can make the trip back to Ohio. I went back to Fl. and was glad I did .I,ts good for your soul as well as your mind.Good luck to you all T.A. Smith

    May 11, 2007 at 6:47 pm in reply to: Exjade feedback #18019
    tasmith123
    Member

    cheryl,Yes I know what Exjade does .I was taking 1750 mg every day. And I know what Aransep does . The reason for the increase was to have more time between transfusions.I also take 1 unit of desferal with every transfusion. Thanks for your comments T.S.

    May 11, 2007 at 6:39 am in reply to: Exjade feedback #18016
    tasmith123
    Member

    Hello,On subject of Exjade ,I saw my kidney DR. yesterday he took me off Exjade .I have been on Exjade fo about 6 weeks he said it would cause kidney failure.Suggest I take Aransep shot every week instead of every other week.Have been taking Aransep shot for over year. Current transfusion dep every 3 weeks. Ferritin at 3710. Going tomorrow to talk about BMT with new Onc Dr.

    May 9, 2007 at 6:30 am in reply to: BMT in Veterans hospital #18092
    tasmith123
    Member

    Thank you Jimbob and Patti for the info on Va hospitals.Jimbob I read the VA puget sound page it has what I have been looking for .Thanks again

    April 28, 2007 at 5:27 am in reply to: Newbie with questions #17933
    tasmith123
    Member

    shellbivens,You can contact aransep.com .They have a program that will supply aransep at no charge to you. Good luck to you T.S.

    April 23, 2007 at 7:23 am in reply to: Iron overload and Desferal #17864
    tasmith123
    Member

    janeanne.The name of the drug is Exjade.You can contact them at Exjade Pharmacy @1-888-884-5006 They will ask you a few questions then they will send to your house.2 bottles 250mg and500mg take 1750 in am with water. I am on my 2nd month no problems….good luck to you

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Viewing 6 posts - 1 through 6 (of 6 total)

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