MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: MDS with elevated WBC #35683
    Trudy Elder
    Participant

    Hi, Carol –

    I was diagnosed with MDS a little over a year ago. My white cell count was also elevated. I had never heard of MDS so I spent a lot of time online trying to figure out what the disease entails. I’ve had chemo treatments (Decitabine) every four weeks since last April and for the last four months, all my blood counts are within the normal range. My local oncologist explained the disease by saying “Your bone marrow is all messed up.” The oncologist treating me at MD Anderson explained about blasts, etc. but I don’t really understand it. This is a wonderful site to learn about MDS.

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